Hello and welcome!

I’m a Type 1.5 MODY 2 diabetic and this blog is my way of keeping track of my progress in handling my diabetes. Although I’ve known about being MODY 2 for some time now, I have not been able to handle it to my satisfaction. There seems to be no box I fit into. I don’t even react like most MODY 2s do.

At the beginning of 2010, I learnt about how a low carb diet and the right kind of sports can help treat diabetes and have decided to give this a go. In order to motivate me not to give up, I’ve started this blog. Hopefully, I’ll get to know other MODY 2s too with the same problems! As time goes by, you will find posts on recipes, my physical condition and my experiences with insulin.

Recipes – the first problem I had when I started the low carb diet was not being able to eat the carbs I had always enjoyed. Could I replace these somehow? I scoured the internet for recipes and stores to buy the ingredients to make these recipes. I then learnt that companies were also selling other low carb products, most of the time, for a bomb. Would you pay €14,95 for artificial flavouring, €26 for powdered Splenda or €6 for a bottle of jam that has no real fruits in it? I am living in the wrong country. Also, some of the recipes don’t work well if you don’t buy a particular brand of product. So, I thought, since I do like to cook, I would experiment and create my own substitutes just like some other low carb bloggers have been doing. Who knows – I may eventually discover some phenomenal recipes.

Physical condition – although I have been going to a fitness studio on a regular basis, I realise that I have not built any muscle after 6 years. So I am now following the recommendations made by Dr Bernstein in his book ‘Diabetes Solution’. Will I see a different me?

Insulin – if I can reduce the amount of insulin taken, I will be happy. But blood glucose is very difficult to control for me and I am trying to find the relationship between food, insulin, blood glucose and sports so that I can get the upper hand.

I blog infrequently. It takes time to do a post and I find I have a lot of other things to do.

However, that doesn’t stop you from looking around. I hope you enjoy reading what you find and that it will be of some help. To read my latest post, click on Latest Post in the toolbar above.

Fran

9 Responses to “”

  1. Helen May 26, 2010 at 04:03 #

    Hi Fran,

    I think I may have MODY 2. Except for gestational diabetes two years ago, diabetes is a new diagnosis for me, though my FBG has been iffy for as long as I can remember. Not enough to concern my doctors, though. But I always felt like something was screwed up with my blood sugar.

    Though I don’t know for sure that it’s MODY 2, it feels correct. I’ve been finding it hard to find good information, especially people’s experiences with it. So I hope you continue with your blog. I’m thinking of doing the same thing – maybe we can follow each other’s progress. I’m trying low-carb, too. I’m not feeling that good on it so far. But it’s only been a week.

    Hope to read another post from you soon.

    Helen

    • franinmunich June 5, 2010 at 20:06 #

      Hi Helen,
      if my posts are able to help you, I would be very happy. Are you not able to get a genetic test? Check if your insurance will pay for it. Type 1.5 seems to be more unpredictable than the other types from my experience. I never seem to react like other diabetic types.

  2. Anna May 5, 2012 at 20:55 #

    Hi Fran,

    I stumbled across your blog because I was searching for a low carb spaetzle recipe. How funny. I am of Asian descent living in Berlin, with some kind of diabetes that held over from my recent gestational diabetes. Doctors here do not seem to take me seriously as I have been controlling my blood sugar with a low carb/high fat diet and have a normal HbA1c. So I don’t know if it is MODY or not because they refuse to perform expensive tests on me.

    I will be reading your posts with interest as it is always nice to hear about both your health/medical experiences as well as the kitchen experiments. By the way, do you know a good source for gluten? There are a few “Bio Laden” in my area but they don’t have very many products for low carb cooking. They do have a lot of gluten-free stuff but that doesn’t help me.

    Anna

    • franinmunich May 6, 2012 at 10:50 #

      Hi Anna,
      nice to hear your comments. Yes, the doctors are not very willing to do a MODY test because it is very expensive. After reading about the discovery of more MODY types, I asked if it were possible to do a retest but my doc said it was very expensive and the results indicated that I was MODY2 (which I am not going to complain about because it is a good MODY type).If you are able to keep your Hb1Ac to normal levels then they are definitely not going to spend the money on you cos the insurance companies will not pay.

      I order my gluten from here – http://www.lowcarbwelt.de. I usually order a large amount cos it is more economical. Order your stuff through the Internet. The organic shops only sell small quantities and it costs more.

      Fran

      • Anna May 7, 2012 at 17:06 #

        Thank you for the link and the reference to MODY2. I didn’t know there could be a “good” type so I looked this up and found out much more about it. Now I wonder whether or not I am also MODY2, since I am not obese, I have a direct relative with non-Type 1 diabetes (could be Type 2, but also not tested for MODY) and I had mild hyperglycemia detected during pregnancy. However I can’t think of a way to determine whether I am insulin resistent on my own. I guess time will tell as my condition worsens or stays the same. Thanks again!

  3. Angie February 7, 2013 at 14:57 #

    I was diagnosed as Mody 2 two weeks ago. I was on Glumetza for five years. My doctor, who formerly worked for the University of Chicago with the diabetic research department, took me off of it last week. She wants to see how my glucose readings are for a month, and then we will make a decision. I have been loosely counting carbs since diagnosis, but I am hoping to be more strict with my diet. It is a pain. I am 5’6″ and 117 lbs. I love carbs. There is so little about Mody 2 that I am confused by the treatment. I would like to know more about other patients’ treatments and their effects.

    • franinmunich February 7, 2013 at 15:09 #

      Hi Angie, welcome to the club! Yes, there is little info out there on MODY but there is more today then when I was diagnosed. It was not easy for me. Tablets just did not work well. Insulin works the best. Until end last year I did not work and could make all kinds of low carb things and cook sensibly. I’ve just started working full-time and have no time to prepare so many things in the evening (my daughter is fussy) so I have gone back to eating carbs and compensate for it by injecting more insulin. It’s not good but I am still adjusting to the change in my schedule and trying to find the best solution. If you can cut down your carbs bit-by-bit, I have found that to be a very good solution. If you have any questions, I’d be happy to try and answer them.

  4. joyfulmama November 29, 2013 at 09:01 #

    Another MODY2 here in Midwest US! I like to say that I have been every kind of diabetic because high sugars we’re first detected when I was pregnant with my 1st baby (gestational), then when it didn’t go away I was told it was type 2, so I was exercising like crazy and eating really well, but then they said I should stop because I was underweight when I started…so “you’re probably a type 1.” At some point in there, I switched to my current doctor who is very detail oriented and felt things weren’t lining up with type 1, so was able to push for a MODY test and here I am. Been on a pump for years and may get to go off once my baby (number 4!!) is born and I’ll try sulfonylurea medication. We’ll see how it goes…not sure I like the sound of it, but a break from the pump would be nice! I look forward to seeing how it’s going for you.

    • franinmunich November 29, 2013 at 11:57 #

      Hi joyfulmama, glad you finally got diagnosed correctly. It really is difficult to get tested for MODY because of the cost of the test and most doctors will try everything else first. If you have to pay for your own tests, most people would rather not do it.
      I would be interested in finding out how you do with sulfonylurea. Sulfonylurea acts by stimulating the beta cells to produce insulin and my beta cells are damaged and as time went by, decreased, so that I don’t have many left to be stimulated! I think my doctor said it would not be of any use because we did a C-peptide test to check the beta cells and the count was low.

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